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Share Your EDS Journey

Your experiences matter. Help others by sharing what's worked for you.

Why Share?

  • Help others on their EDS journey

  • Build our resource hub

  • Inspire the newly diagnosed

  • Share what works

What to Share

  • Your EDS story

  • Helpful products and systems that work

  • Trusted specialists

  • Daily living tips

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By submitting, you grant permission for your information to be used throughout our website to build resources for the EDS community. Your details will only be shared as agreed, and you'll be contacted before publishing. You'll receive our FREE EDS Toolkit as soon as it finalised as a thanks for contributing.

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This website curates EDS-related information and shares real-life stories to help raise awareness of EDS. It is not a substitute for medical advice — readers should always consult their healthcare professional.

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Original articles, user stories, and compilations may not be reproduced without written permission.
Information sourced from external sites remains the property of the original authors.

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