What is Ehlers-Danlos Syndrome?

Ehlers Danlos Syndrome (EDS) is a group of 13 genetic conditions affecting connective tissue throughout the body. Connective tissue provides support to skin, bones, blood vessels, and organs.

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The main features include:

• Joint hypermobility (flexibility)

• Stretchy skin

• Tissue fragility

• Chronic pain

• Fatigue

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Learn more about EDS types from the Ehlers-Danlos Society Define EDS.

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Most Common Types ​

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Hypermobile EDS (hEDS)

The most common type, causing joint hypermobility, pain, and fatigue.

Find the hEDS diagnostic criteria here

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Classical EDS (cEDS)

Features very stretchy skin and widened scars alongside joint hypermobility.

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Vascular EDS (vEDS)

The most serious type, affecting blood vessels and internal organs.

NHS information about all EDS types

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All 13 Types of EDS 

Ehlhers-Danlos Society Description of Types Here

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• Arthrochalasia EDS (aEDS)

• Brittle cornea syndrome (BCS)

• Cardiac valvular EDS (cvEDS)

• Classical EDS (cEDS)

• Classical-like EDS (clEDS)

• Dermatosparaxis (dEDS)

• Hypermobile Hypermobility EDS (hEDS)

• Kyphoscoliotic EDS (kEDS)

• Musculocontractural EDS (mcEDS)

• Myopathic EDS (mEDS)

• Periodontal EDS (pEDS)

• Spondylodysplastic EDS (spEDS)

• Vascular EDS (vEDS)

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Related and Secondary Conditions

Many people with EDS also experience:

• Postural Orthostatic Tachycardia Syndrome (POTS)

• Mast Cell Activation Syndrome (MCAS)

• Fibromyalgia

• Dysautonomia

• Chiari Malformation

• Tethered Cord Syndrome

• Gastrointestinal issues

• Widespread Pain

• Chronic fatigue

• Neurodiversity

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This List is not exhaustive.

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Getting Diagnosed

Diagnosis involves assessment by specialists familiar with EDS, usually rheumatologists or geneticists.

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Find UK EDS specialist clinics

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Living With EDS

EDS is a lifelong condition, but many find ways to manage symptoms effectively through:

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• Targeted physiotherapy

• Pain management strategies

• Energy conservation techniques

• Supportive aids and adaptations

• Psychological support and CBT

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EDS UK's guides for daily living

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Finding Support

You're not alone in this journey.

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• Join the Ehlers-Danlos Support UK community

• Find your local EDS support group

• Connect with us to share your story

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Remember: Everyone's experience with EDS is different. What works for one person may not work for another. Always consult healthcare professionals for medical advice.

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Get our free EDS toolkit →