What is Ehlers-Danlos Syndrome?
Ehlers Danlos Syndrome (EDS) is a group of genetic conditions affecting connective tissue throughout the body. Connective tissue provides support to skin, bones, blood vessels, and organs.
The main features include:
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Joint hypermobility / instability
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Stretchy skin
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Tissue fragility
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Chronic pain
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Fatigue
Learn more about EDS types from the Ehlers-Danlos Society Define EDS.
Common Types
Hypermobile EDS (hEDS)
The most common type, causing joint hypermobility, pain, and fatigue.
Find the hEDS diagnostic criteria here
Classical EDS (cEDS)
Features very stretchy skin and widened scars alongside joint hypermobility.
Vascular EDS (vEDS)
The most serious type, affecting blood vessels and internal organs.
NHS information about all EDS types
All Types of EDS
Ehlhers-Danlos Society Description of Types Here
Related and Secondary Conditions
Many people with EDS also experience:
This List is not exhaustive.
Getting Diagnosed
Diagnosis involves assessment by specialists familiar with EDS, usually rheumatologists or geneticists.
Find UK EDS specialist clinics
Living With EDS
EDS is a lifelong condition, but many find ways to manage symptoms effectively through:
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Targeted physiotherapy
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Pain management strategies
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Energy conservation techniques
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Supportive aids and adaptations
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Psychological support and CBT
EDS UK's guides for daily living
Finding Support
You're not alone in this journey.
Remember: Everyone's experience with EDS is different. What works for one person may not work for another. Always consult healthcare professionals for medical advice.