Resources
Helpful Links
Official Organisations
Supportive Tools
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Ehlers-Danlos Society - Global organization providing research, educational resources, and support
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Ehlers-Danlos Support UK - UK charity with excellent information sheets and support services
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Hypermobility Syndromes Association (HMSA) - Specialized resources for hypermobility conditions
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EDS ECHO - Educational program for healthcare providers and patients
Medical Resources
Professional Insights
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NHS EDS Information - Clear, reliable medical information
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The EDS Clinic - Educational articles from specialists
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RCGP EDS Toolkit for Healthcare Providers - Comprehensive resource for medical professionals
Research and Scientific Information
Participate
Educational Content
Connect
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The Chronic Pain Partners - Formerly EDS Awareness, offers webinars and educational resources
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Alan Spanos MD Resources - Physician-created resources for joint hypermobility
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The Zebra Club - Educational videos and materials about EDS
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EDS Research Registry - Participate in advancing EDS research
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HEDGE Study - Hypermobile Ehlers-Danlos Genetic Evaluation research
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PubMed EDS Collection - Academic research articles about EDS
For Related Conditions
Awareness
Learn
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The VEDS Movement - Resources specifically for Vascular EDS
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Annabelle's Challenge - UK charity for Vascular EDS
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POTS UK - Resources for Postural Orthostatic Tachycardia Syndrome
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Dysautonomia International - Information on autonomic disorders
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Mast Cell Action - UK charity for mast cell disorders
For Specific EDS Types
Practical Living Resources
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Muldowney Physical Therapy - Renowned physical therapy protocols for hypermobility
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Jeannie Di Bon Movement Method - Exercise specifically for hypermobility
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Chronically Jenni - Blog with practical living tips
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Life with HMSA - Blog with management strategies
Community Support
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r/ehlersdanlos - Active Reddit community
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Inspire EDS Community - Online support forum
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The Mighty's EDS stories - Personal narratives
For Healthcare Providers
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EDS ECHO - Educational program for providers
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2017 EDS Classification - Current diagnostic criteria
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International Consortium Resources - Resources for medical professionals